Wednesday, April 20, 2011
I always promise that I will post weekly but rarely ever do. I've been so busy lately I've barely had time to take a breath, well at least between naps- I do have Chronic Lyme after all! Gotta' laugh at yourself sometimes or you'll go crazy. :)
One of the biggest projects I am currently working on is starting a support group for my county. The two closest groups at this point in time are nowhere near being local. That is where the Lyme Alliance of the Berkshires (L.A.B.) comes in. I'm trying to create a support network for Lyme patients in Western Massachusetts, something that has been needed for a very long time.
My other goal with L.A.B. is to bring awareness about Lyme Disease to the area. Just from talking to people where I live it's obvious how they have been conditioned by the mainstream medical community to be desensitized to the severity of Lyme Disease. Most people I have talked to either don't know what it is at all, have a vague knowledge of the disease or are only aware of the IDSA view of Lyme.
Along with this I am also currently working on the Letters for Lyme: Physician Awareness! campaign, doing what I can to help the organizers of the MAYDAY! Lyme Rally in DC and taking part in the Ribbons Across America action held in honor of Lyme Disease Awareness Month nationwide.
There are other projects in the wings but due to them still being in the preplanning stages I am unable to share anymore info.
On the home front my battle with Lyme is still ongoing. I could lie and say that everything has been sunflowers and smiles but that is not the case. February through April has been quite the roller coaster ride. With flare-ups coming and going at a breakneck speed I've been a mess much of the time.
Some might judge me as being negative due to my honesty, however they don't say "The truth will set you free." for no reason. I feel that by giving my readers a true "behind-the-scenes" look into my life it allows them access to the realities of my daily struggles with Lyme rather than just a surface snapshot.
In the end I'm not here to entertain, I'm here to educate about the repercussions of delayed treatment, misdiagnosis and the long-term effects of this disease. I write about my struggles so those in the same situation may know they are not alone, as I was for so long in this battle. Being able to hear the words "I understand what you're going through." has meant the world to me. I'm not lost in the dark anymore, there is light- little specks all around. They have names. They are my friends in the Lyme fight. You know who you are.
Posted by Kenneth M. at 9:38 PM